Tuesday, December 27, 2011

The Year in Photos: March & April

Our friends Chad and Emily got married in March. I was a groomsman and Sofia was the flower girl. Jessica worked security for the flower girl. I think we all behaved competently. This is Justin and Jonathan, who were also groomsmen. We got a bit bored during rehearsal.

Our mail lady, delivering my copy of Giant Sized Tales to Suffice, a comic labor of love from friend Kenny Keil. Kenny was publishing Tales at SLG, but then lost his distribution due to a change in policy. He raised the money to publish on his own, and I was very excited to get my copy. So excited that I asked our mail lady if I could take a picture of her delivering it. She was amused.

Sofia, obviously. 

Sofia and Meemaw. Meemaw was in Vanderbilt Hospital at the same time as Nadia having major back surgery. I took Sofia over from the Children's Hospital to the rehab clinic to visit Meemaw one day, and they became good friends. I'm not doing a good job of getting them together. 

I finally had my head examined this year. You can all let that one go, now. It was for a reading study.

I don't even know the guy in that picture. We are very different people. Nadia was born on March 22nd, and I was not ready. At all. I didn't realize how not ready I was until long after Nadia was born, when I was able to step away from the situation and view everything that happened from a safer distance. 

After a week of being stabbed and bent, I was happy that Nadia would get to come home. I had started to hate the hospital. Escaping was a relief.

This is virtually the same picture that we took when Sofia came home, except there is now a lot more crap downstairs. Also of note: my "I'm With Finkleman" button. This was the day that Sofia got to meet Nadia.

If you need a description for this one, you may be at the wrong blog.

Sofia, myself, and a little girl who was much more lovely than this photo illustrates. She took it upon herself to watch over Sofia while her own mommy was busy being hit on. That guy was failing miserably, by the way. Not pictured: Jessica, who took the picture, and Nadia, who was chilling in her carrier.

It was a good thing we went to the playground that day. Sofia did not get much Mommy/Daddy for the next month.

In a year filled with bad nights, this was the worst. 

Pretty much, Johnny.

I called her Jughead for a few days. It was the only thing that could keep her head IV from being banged around without irritating her head.

Obviously more for the parents than for the kid. Nadia had difficulty breathing on her own after she got a cold  in the hospital. Down Syndrome kids developmentally delayed, and this can include their lungs. In Nadia's case, respiratory problems have already existed and are almost inevitable in the future. DS babies have smaller passages in general. It is our job as her family to act accordingly. 

After the initial return to the hospital because Nadia wasn't keeping any food down, and after she'd mostly gotten over a cold that she may have caught in the hospital, her belly got massive. I believe that, at this point, we were told that there wasn't necessarily anything to worry about. It actually got much worse after this, to the point that Nadia's ears started disappearing behind her cheeks.

There is a large gap in photos here. Apparently I have a lot of stuff that I need to file properly. I do remember that there are some important photos of Nadia as she got worse that I would be perfectly happy to just delete.  I remember telling Jessica that I didn't want any photos of Nadia at her worst, when she had hoses coming out of and going into everywhere, because I didn't want to be brought back to that moment. I think the photos are somewhere around here, though.

The good news is that we are past the hospital stuff! The next entry will be May/June, when things started getting much, much better for everyone.

1 comment:

  1. God bless you guys...wow i feel like i was right there with you